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Opal🪩(taylor’s version)
@chronically.opal

21,881 followers

At 7:30am on august 28th I will be going in for major surgery. I’ve know about this surgery for months but just haven’t been ready to talk about it yet, and honestly I still haven’t fully accepted it. I have a condition called pectus excavatum, or sunken chest, basically my sternum is growing in towards my spine. This causes me to have a fist sized dent where my ribs meet. My sternum is compressing my heart not allowing it to function properly. This surgery is called the nuss procedure. While under they will pull my sternum up and place 2 large C shaped metal bars to hold it in position. Think of them as internal braces. From what I’ve been told this surgery is incredibly painful, similar to the pain of a spinal fusion. While the pain will be extreme I trust that my doctors at Cincinnati Childrens know what they are doing! When I was diagnosed with EDS I swore to never get surgery unless I trusted that the doctor understood EDS and had treated many EDS patients before. The doctor doing my surgery is one of those people, I trust her fully! The recovery for this surgery will be rough and long but I know that this will benefit me in the long run💕 #chronicillness #chronicallyill #wheelchair #spoonie #wheelchairuser #eds #ehlersdanlossyndrome #ehlersdanlos #ehlorsdanlossyndrome #potssyndrome #pots #posturalorthostatictachycardiasyndrome #potsawareness #edsawareness #feedingtube #feedingtubelife #tubie #gjtube #visceralhyperalgesia #tubielife #runbyteensforteens #ruminationsyndrome #opalstrong #servicedog #SD #SDIT #servicedogintraining