Content Stats & Analytics for @keep_goin_owen

Owen 👉 Mom is Colleen
@keep_goin_owen

10,283 followers

You did it Owen! Completed your 100th overnight hospital stay. This time with some good news to share 🙌 Owen’s left hemisphere has finally calmed the eff down! His entire left half has been a real a-hole since his birth, firing off seizure spikes 24/7, some big enough for us to see but most remaining subclinical (no physical presentation). And now, 2 years after his corpus callosotomy surgery, we’re finally seeing the results his Doctors wanted. After surgery we knew right away that his epilepsy had improved but tests were still showing that he would likely need additional resection surgeries to fully control that wild fire in his head. But for now, the wild fire is squelched. His hemiplegia (right side weakness) is almost undetectable and focal seizures are taking a compulsory break. Owen still battles daily infantile spasms at age 6 (yes! Unbelievable right??) but we will take this bit of good news as a big ol’ W and strong middle finger directly at epilepsy 🖕 The war rages on but this battle has been won 💜 — — — #epilepsy #seizures #infantilespasms #epilepsywarrior #epilepsyawareness #developmentaldelay #disability #intellectualdisability #lennoxgastautsyndrome #autism #specialneeds #neurosurgery #neurodiversity #inclusion #disabilityadvocate #hollandtribe #epilepsysurgery #TeamOwen #OwenStrong