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aldalliance

ALD Alliance/AJS Foundation

Biography

100% 501c3 - Advocating for ALD Newborn Screening #savetheboys #newbornscreeningsaveslives

Followers 2.89K
Engagement Rate 4.118%
Engagements / post 78
New followers / day -
Global Rank 4.12M
Worldwide
Country Rank -
-
Category Rank
Audience
Topics
Gender
Age
Countries
Languages (beta)
Audience Brand Affinity

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Engagement

Engagement Rate

Avg Likes 71
Avg Comments 7
ER Rate 4.12%

• Compare the engagement rate of aldalliance with similar accounts

Likes and Comments

Comments per 100 Likes

• Relationship between likes and comments in recent posts

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Growth

Follower and Post Growth Trends

2.89K

Engagement Rate Growth Trends

4.118%

Notable Engagers

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Mentions
Stats
Engagement rate 4.118%
Posts per week
Mentioned accounts
A
aldalliance
I
indianlarrymotorcycles
A
aidansridewv
M
mckeagart
G
globalgenes
Mentioned hashtags
#
togetherwecan
#
savetheboys
#
aldnewbornscreening
#
aidanhasaposse
#
newbornscreening
Recent Posts
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Repost from @courageousconner • Hello Friends! It is finally here. We have a qualifying car for the NASCAR Hall of Fame Race! There is still time to raise matching funds to help @aldalliance raise …
2024-07-11
Est. reach 867 - 1.44K
19 0
...
Congratulations to the Krabbe Community 🙏🏼 Over a decade of advocacy today is the day ❤️ Repost from @huntershopefdn • Krabbe is OFFICIALLY on the RUSP! The U.S. Secretary of Health officially ad…
2024-07-03
Est. reach 867 - 1.44K
95 4
...
Another successful Lunch and Learn today at Mt. Sinai with the neurology and endocrinology teams! Sharing our resources for ALD and learning about the ALD clinic. We are grateful for the time spent …
2024-06-21
Est. reach 867 - 1.44K
84 4
...
The most perfect day for Aidan’s Ride yesterday ☀️ Thank you to everyone that came out to support and spend time with us on Father’s Day 44 States and counting - screening for ALD 🎉🎉 We are so gra…
2024-06-17
Est. reach 867 - 1.44K
277 13
...
It’s a beautiful day for Aidan’s Ride ☀️@indianlarrymotorcycles
2024-06-16
Est. reach 867 - 1.44K
134 7
...
Repost from @indianlarrymotorcycles • ⭐️AIDAN’S RIDE 2024⭐️ Sunday, June 16, 2024 Indian Larry Motorcycles 70 N 15th St, Brooklyn, NY 11222 Registration from 10 - 11 a.m. | Kickstands up at 11:30 a.…
2024-06-15
Est. reach 867 - 1.44K
69 0
...
Thank you @troybalderson Congressman Troy Balderson for meeting with our group yesterday to discuss newborn screening and how we can work to improve the process for implementing rare conditions. Gra…
2024-06-13
Est. reach 867 - 1.44K
71 0
...
This Sunday June 16th - come out for Aidan’s Ride Brooklyn - Indian Larry Motorcycles 70 North 15th St 10:00 AM Come out & support saving children through newborn screening- help us to continue ou…
2024-06-11
Est. reach 867 - 1.44K
58 2
...
Repost from @courageousconner • Hello Friends, My TaeKwondo Studio is participating in a fundraising event called the GTMA Pinewood Derby Charity Race at the NASCAR Hall of Fame. They asked Mummy …
2024-06-08
Est. reach 867 - 1.44K
13 0
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I am honored to be speaking about Newborn Screrning in America at the NORD 2024 - #livingrareforum in Los Angeles this weekend on June 8th. This in person and virtual meeting brings together rare dis…
2024-06-06
Est. reach 867 - 1.44K
46 7
...
AIDAN’S RIDE BROOKLYN Sunday June 16th 70 North 15th St Brooklyn, NYC Come out and support - help us to continue our work to help saving babies through newborn screening!!! Don’t ride? That’s fin…
2024-06-05
Est. reach 867 - 1.44K
38 0
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State #44! A heartfelt thank you to Dannielle Schmit and her family who helped advocate for this screening in their home state in honor of her beautiful brother Jacob who succumbed to ALD in 2011. A…
2024-06-03
Est. reach 867 - 1.44K
94 8

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