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ehlers.danlos

The Ehlers-Danlos Society

Health & Fitness
Biography

The global nonprofit organization dedicated to change & progress in the Ehlers-Danlos syndromes (EDS) & hypermobility spectrum disorders (HSD).

Followers 1.85K
Engagement Rate 0.843%
Engagements / post 16
New followers / day -
Global Rank 121K
Worldwide
Country Rank 14.8K
US
Category Rank 519
Health & Fitness
Audience
Topics
Gender
Age
Countries
Languages (beta)
Audience Brand Affinity

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Engagement

Engagement Rate

Avg Likes 16
Avg Comments
ER Rate 0.84%

• Compare the engagement rate of ehlers.danlos with similar accounts

Likes and Comments

Comments per 100 Likes

• Relationship between likes and comments in recent posts

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Growth

Follower and Post Growth Trends

1.85K

Engagement Rate Growth Trends

0.843%

Notable Engagers

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Mentions
Stats
Engagement rate 0.843%
Posts per week
Mentioned accounts
E
ehlers.danlos
V
VEDSMovement
T
themarfanfoundation
L
lara.bloom
G
GreatNonprofits
Mentioned hashtags
#
GreatNP2023)!
Recent Posts
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Enter Zebras Got Talent by 11:59 pm Eastern Time tonight!⁠ ⁠ ⁠'Zebras Got Talent' is an in-person and online exhibition that showcases the creativity of the community ehlers-danlos.com/events/2023-gl…
2023-07-24
Est. reach 556 - 927
4 0
The Ehlers-Danlos syndromes (EDS) are a group of genetic connective tissue disorders. Each type of EDS is caused by pathogenic variants of genes that provide the instructions for making connective ti…
2023-07-20
Est. reach 556 - 927
21 0
...
An amazing weekend was spent with members of the vascular Ehlers-Danlos syndrome (vEDS) community in Chicago for the @VEDSMovement and @themarfanfoundation Conference! ⁠ ⁠ The Ehlers-Danlos Society @…
2023-07-17
Est. reach 556 - 927
11 0
...
"We ran a full day of fitness classes that included yoga, Pilates, Zumba, dance fit, seated exercise, salsa, & heeled dance. We raised a grand total of £832.00 (+ Giftaid!) which we are super pleas…
2023-07-17
Est. reach 556 - 927
11 0
What is tissue fragility? Tissue fragility means that the body’s organs and other structures are more vulnerable to damage. Tissue fragility can present as easy bruising and poor wound healing in m…
2023-07-14
Est. reach 556 - 927
19 0
...
The Ehlers-Danlos Society is one of the first winners of a 2023 Top-Rated Award from @GreatNonprofits (#GreatNP2023)! Read inspiring stories and add your own! https://greatnonprofits.org/org/the-ehle…
2023-07-13
Est. reach 556 - 927
14 0
What is skin hyperextensibility? Skin hyperextensibility means that the skin can be stretched beyond the normal range. Skin extensibility, or skin stretchiness, is measured by pinching and lifting …
2023-07-13
Est. reach 556 - 927
17 0
...
Jasmin Polsini, Vice Chair Bettina Immler, and advisory board members from Ehlers-Danlos Network Switzerland, member of The Ehlers-Danlos Society's Global Affiliation Program, have taken part in Swis…
2023-07-12
Est. reach 556 - 927
7 0
...
Group Discussion: Addressing the Unmet Needs of People With Ehlers-Danlos Syndromes (EDS) & Hypermobility Spectrum Disorders (HSD) in Ireland. ⁠ @ehlers.danlos recognizes the lack of access to prope…
2023-07-11
Est. reach 556 - 927
9 0
What is joint hypermobility? Joint hypermobility means that a person’s joints have a greater range of motion than is expected or usual. Some people have joint hypermobility that does not cause them…
2023-07-11
Est. reach 556 - 927
39 0
What's in your EDS or HSD toolkit to manage flare-ups?
2023-07-10
Est. reach 556 - 927
18 0
...
The inaugural family camp for vascular Ehlers-Danlos syndrome (vEDS), organized by The Ehlers-Danlos Society @ehlers.danlos in collaboration with @vedsmovement, took place this weekend at @CampJoyOhi…
2023-07-10
Est. reach 556 - 927
12 0
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set…
2023-07-10
Est. reach 556 - 927
33 0

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Location
United States of America
Estimated Rate
$? / post

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